Category: Travel

Next Stop, 14,000′!

I grew up hunting and fishing with my Dad and Brother. A few years ago I was at an annual dove hunt, camping with some family friends and late at night around the campfire I overheard Chris Prater talking about the San Francisco Giants (World Series Champs!). He was saying that since Barry Bonds retired, Read More …

Hand Controls

Friedreich’s ataxia (FA) brings lots of change in many different ways. In a previous post a talked about losing the ability to feel the vibration of a tuning fork in my big toe (I have only lost the ability to feel light touch so it will still hurt when you step on my toe).  At Read More …

Preparing to get STOKRed!

The STOKR (Scenic Tour of the Kootenai River) is a two day bike tour in Libby, MT. Uncle Steve lives in Libby and has done the STOKR in the past so this year he invited me to come get STOKERed with him and my cousin Ashley. We are planning to do the first day (98 Read More …

Friends in Hong Kong

FARA has friends all over the world not only performing research but providing support to continue research at an urgent pace. So when I decided to come to Hong Kong it was a great opportunity to connect with a family that has been a friend of the FA community for quite a few years. Roger Read More …