Category: Research

A day in the clinic

I am coming to the end of a 12 hour day in the clinic for the EPI-743 trial. They drew blood 6 times today at different intervals to test how long the drug lasts in the system. I have been sitting here on my computer researching the TV air times for Le Tour de France, Read More …

Clinical Trial Participation

The FA community took another significant step in advancing FA research this week as the EPI-743 trial got started at Children’s Hospital of Philadelphia (CHOP).  The trial has been going for several weeks at University of South Florida (USF) but it got started at CHOP this week. After receiving the recruitment notice and placing a Read More …

Update

Perhaps this post is more for me than you but mainly I think it is to keep my Mom informed:-) – First of all I must tell you just a little bit about the FARA Energy Ball.  We have been heading down to the very generous community of Tampa, FL for the Energy Ball now Read More …