Month: March 2013

Clinical Trial Participation

The FA community took another significant step in advancing FA research this week as the EPI-743 trial got started at Children’s Hospital of Philadelphia (CHOP).  The trial has been going for several weeks at University of South Florida (USF) but it got started at CHOP this week. After receiving the recruitment notice and placing a Read More …

AMRAP Refuel Bars

My diet is not 100% Paleo. However, Paleo principles play into every choice I make when it comes to food. If there is a choice between a food that contains grains, dairy, or added sugars and one that does not I’ll take the Paleo one every time. I have found that eating like this makes Read More …

Catrike Generosity

I just got home from an amazing weekend in Orlando Florida for the 9th annual Catrike Rally. It was really great to share the weekend with my Mom, Dad, and three friends from Texas including Emily Penn who shared her birthday with us yesterday! Happy Birthday Emily! We all rode together on Saturday on the Read More …